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Project Tinkerbell - THANK YOU!!


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#1 flymango

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Posted 07 October 2011 - 01:30

SEE POST DATED 2011/12/05 ON PAGE 2 OF THIS THREAD FOR FUND RAISING DETAILS AND THE CHANCE TO WIN A 2012 SPECIALIZED EPIC COMP 29'er MTB VALUED AT R32,500

This is a very emotional yet challenging post for me to make: there is a Hubber in our midst that urgently could do with your immediate emotional and imminent financial support.

A very good friend of my wife and I, my really close cycling buddy and regular training partner, and fellow Hubber, was last week confirmed as having motor neuron disease (MND) following earlier lumbar punctures and unsuccessful HIG treatment.

The diseases are a group of neurological disorders that affect the cells that control voluntary muscle activity such as walking, speaking, breathing, swallowing and general movement of the body.

Since earlier this year, Tinkerbell has been struggling with a severe loss of function in her right hand and more recently her right foot. Dragging of the foot and muscle wasting in the hands are classical symptoms of the disease in its early stages.

MND progresses quickly and is typically fatal within 5 years. But Tinkerbell is a hammer with an incredible will! She recently completed the Trans Baviaans despite showing advanced stages of the symptoms mentioned above.

MND has no known cure according to Western medicine. But there is hope if one looks to Chinese medicine treatment, and we would like to get Tinkerbell to a Chinese clinic as soon as possible. Hope is all we have to cling to at this stage of the race, and this is going to be Tinkerbell’s toughest race yet. Tougher than the Trans Baviaans.

For now the aim of this post is to raise awareness of Tinkerbell’s condition and plight. I will be exploring fund raising ideas and administrative requirements over the next few days, and will then be calling on Hubbers for your support.

Until then, any constructive comments, ideas or support would be appreciated.




That’s Tinkerbell on the left of the photo in blue, together with my wife and me. If any of you should recognise or know Tinkerbell, please be sensitive to the fact that she is the mother of two young children who are not yet aware or understanding of her condition.

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Edited by flymango, 20 March 2012 - 09:11 .

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#2 Cois

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Posted 07 October 2011 - 02:45

This is bad. All I can do is raise her up in prayer at the moment. It must be one of the worst "diseases" out there.
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#3 Dangle

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Posted 07 October 2011 - 06:49

Sorry to hear Mango, please let us know how we can help.
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#4 Pieterg

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Posted 07 October 2011 - 07:22

Sorry to hear. Here is a link about healing it's in Afrikaans but if you Google healing you'll find something please have a look.http://stangerchristiancentre.co.za/Portals/0/09%20-%20Bybelse%20Antwoorde.pdf.Jesus is our healer and if you go to Him He will heal. If you guys is at the crater the weekend please contact me by PM or my Cell 084 963 8542 and I'll pray for you .I’ll also put you on my prayer list.

That's all we can do.The evil one is here to destroy us humans. Prayer is the answer.

Forty Scripture Memory Verses On Healing


Romans 10 tells us that faith comes from hearing and hearing from the word of Christ. To help us believe God for healing ourselves, our friends and our families it helps to have a good grasp of the Scriptures concerning healing. These Scriptures are small enough to be written on a business card sized bit of paper, carried around and memorized.

1. (Exodus 15:26 NKJV) and said, "If you diligently heed the voice of the LORD your God and do what is right in His sight, give ear to His commandments and keep all His statutes, I will put none of the diseases on you which I have brought on the Egyptians. For I am the LORD who heals you."

2. (Deuteronomy 32:39 NKJV) 'Now see that I, even I, am He, And there is no God besides Me; I kill and I make alive; I wound and I heal; Nor is there any who can deliver from My hand.

3. (2 Chronicles 7:14 NKJV) "If My people who are called by My name will humble themselves, and pray and seek My face, and turn from their wicked ways, then I will hear from heaven, and will forgive their sin and heal their land.

4. (Psalms 30:2 NKJV) O LORD my God, I cried out to You, And You healed me.

5. (Psalms 6:2 NKJV) Have mercy on me, O LORD, for I am weak; O LORD, heal me, for my bones are troubled.

6. (Psalms 103:1-4 NKJV) Bless the LORD, O my soul; And all that is within me, bless His holy name! {2} Bless the LORD, O my soul, And forget not all His benefits: {3} Who forgives all your iniquities, Who heals all your diseases, {4} Who redeems your life from destruction, Who crowns you with lovingkindness and tender mercies,

7. (Psalms 107:20 NKJV) He sent His word and healed them, And delivered them from their destructions.

8. (Psalms 147:3 NKJV) He heals the brokenhearted And binds up their wounds.

9. (Proverbs 3:7-8 NKJV) Do not be wise in your own eyes; Fear the LORD and depart from evil. {8} It will be health to your flesh, And strength to your bones.

10. (Proverbs 4:20-22 NKJV) My son, give attention to my words; Incline your ear to my sayings. {21} Do not let them depart from your eyes; Keep them in the midst of your heart; {22} For they are life to those who find them, And health to all their flesh.

11. (Isaiah 53:5 NKJV) But He was wounded for our transgressions, He was bruised for our iniquities; The chastisement for our peace was upon Him, And by His stripes we are healed.

12. (Isaiah 58:8 NKJV) Then your light shall break forth like the morning, Your healing shall spring forth speedily, And your righteousness shall go before you; The glory of the LORD shall be your rear guard.

13. (Isaiah 61:1 NKJV) "The Spirit of the Lord GOD is upon Me, Because the LORD has anointed Me To preach good tidings to the poor; He has sent Me to heal the brokenhearted, To proclaim liberty to the captives, And the opening of the prison to those who are bound;

14. (Jeremiah 3:22 NKJV) "Return, you backsliding children, And I will heal your backslidings." "Indeed we do come to You, For You are the LORD our God.

15. (Jeremiah 17:14 NKJV) Heal me, O LORD, and I shall be healed; Save me, and I shall be saved, For You are my praise.

16. (Jeremiah 30:17 NKJV) For I will restore health to you And heal you of your wounds,' says the LORD, 'Because they called you an outcast saying: "This is Zion; No one seeks her."'

17. (Jeremiah 33:6 NKJV) 'Behold, I will bring it health and healing; I will heal them and reveal to them the abundance of peace and truth.

18. (Hosea 6:1 NKJV) Come, and let us return to the LORD; For He has torn, but He will heal us; He has stricken, but He will bind us up.

19. (Hosea 14:4 NKJV) "I will heal their backsliding, I will love them freely, For My anger has turned away from him.

20. (Malachi 4:2 NKJV) But to you who fear My name The Sun of Righteousness shall arise With healing in His wings; And you shall go out And grow fat like stall-fed calves.

21. (Matthew 4:23 NKJV) And Jesus went about all Galilee, teaching in their synagogues, preaching the gospel of the kingdom, and healing all kinds of sickness and all kinds of disease among the people.

22. (Matthew 8:13 NKJV) Then Jesus said to the centurion, "Go your way; and as you have believed, so let it be done for you." And his servant was healed that same hour.

23. (Matthew 8:16 NKJV) When evening had come, they brought to Him many who were demon-possessed. And He cast out the spirits with a word, and healed all who were sick,

24. (Matthew 9:35 NKJV) Then Jesus went about all the cities and villages, teaching in their synagogues, preaching the gospel of the kingdom, and healing every sickness and every disease among the people.

25. (Matthew 10:1 NKJV) And when He had called His twelve disciples to Him, He gave them power over unclean spirits, to cast them out, and to heal all kinds of sickness and all kinds of disease.

26. (Matthew 10:8 NKJV) "Heal the sick, cleanse the lepers, raise the dead, cast out demons. Freely you have received, freely give.

27. (Matthew 12:22 NKJV) Then one was brought to Him who was demon-possessed, blind and mute; and He healed him, so that the blind and mute man both spoke and saw.

28. (Matthew 14:14 NKJV) And when Jesus went out He saw a great multitude; and He was moved with compassion for them, and healed their sick.

29. (Luke 6:19 NKJV) And the whole multitude sought to touch Him, for power went out from Him and healed them all.

30. (Luke 9:6 NKJV) So they departed and went through the towns, preaching the gospel and healing everywhere.(The twelve are sent out)

31. (Luke 10:8-9 NKJV) "Whatever city you enter, and they receive you, eat such things as are set before you. {9} "And heal the sick there, and say to them, 'The kingdom of God has come near to you.'(The seventy are sent out)

32. (Luke 17:15 NKJV) And one of them, when he saw that he was healed, returned, and with a loud voice glorified God,(The story of the ten lepers)

33. (Acts 3:12 NKJV) So when Peter saw it, he responded to the people: "Men of Israel, why do you marvel at this? Or why look so intently at us, as though by our own power or godliness we had made this man walk?

34. (Healing of the lame man at the Gate Beautiful) (Acts 4:29-31 NKJV) "Now, Lord, look on their threats, and grant to Your servants that with all boldness they may speak Your word, {30} "by stretching out Your hand to heal, and that signs and wonders may be done through the name of Your holy Servant Jesus." {31} And when they had prayed, the place where they were assembled together was shaken; and they were all filled with the Holy Spirit, and they spoke the word of God with boldness.

35. (1 Corinthians 12:9 NKJV) to another faith by the same Spirit, to another gifts of healings by the same Spirit,

36. (James 5:14-16 NKJV) Is anyone among you sick? Let him call for the elders of the church, and let them pray over him, anointing him with oil in the name of the Lord. {15} And the prayer of faith will save the sick, and the Lord will raise him up. And if he has committed sins, he will be forgiven. {16} Confess your trespasses to one another, and pray for one another, that you may be healed. The effective, fervent prayer of a righteous man avails much.

37. (Revelation 22:2 NKJV) In the middle of its street, and on either side of the river, was the tree of life, which bore twelve fruits, each tree yielding its fruit every month. The leaves of the tree were for the healing of the nations.

38. (Luke 8:47 NKJV) Now when the woman saw that she was not hidden, she came trembling; and falling down before Him, she declared to Him in the presence of all the people the reason she had touched Him and how she was healed immediately.

39. (Luke 8:48 NKJV) And He said to her, "Daughter, be of good cheer; your faith has made you well. Go in peace."

40. (Luke 5:17 NKJV) Now it happened on a certain day, as He was teaching, that there were Pharisees and teachers of the law sitting by, who had come out of every town of Galilee, Judea, and Jerusalem. And the power of the Lord was present to heal them.


Hope this will help.Please pm me if I can't help
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#5 cervelo

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Posted 07 October 2011 - 07:55

Will think of her and her family. Any of the neoron, nerve system illnesss are hell, and not only for the sufferer.

#6 flymango

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Posted 07 October 2011 - 11:14

Thanks for the support thus far. Posted Image

Got a lunchtime date with a very good friend who's a bit of a celeb and whom I'm going to ask to be the patron of this project. Watch this space for more details and clearer objectives ....
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#7 Tumbleweed

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Posted 07 October 2011 - 11:18

Gonna pin this topic. That's about all I can offer at the moment.
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#8 Chubba

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Posted 07 October 2011 - 11:22

Good luck, will keep an eye on this thread for further info.

#9 Mackem

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Posted 07 October 2011 - 11:25

Amazing woman with a great family!!

D - Let me know how we can help (will get the Cycles Direct guys involved too)...... Graeme
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#10 ngala24

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Posted 07 October 2011 - 11:32

This is the same disease as Joost Vd Westerhuizen has been diagnosed with ?
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#11 flymango

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Posted 07 October 2011 - 11:48

View PostMackem, on 07 October 2011 - 11:25 , said:

Amazing woman with a great family!!

D - Let me know how we can help (will get the Cycles Direct guys involved too)...... Graeme
Thanks G. Certainly got the CD guys on my radar screen. Just need to gather our thoughts for now and come up with credible action plans.

Edited by flymango, 07 October 2011 - 11:52 .

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#12 flymango

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Posted 07 October 2011 - 11:50

View Postngala24, on 07 October 2011 - 11:32 , said:

This is the same disease as Joost Vd Westerhuizen has been diagnosed with ?

I'm no expert but told its similar but not the same.
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#13 Thug

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Posted 07 October 2011 - 11:54

My thoughts are with her and her family.


#14 Cavendish

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Posted 07 October 2011 - 01:16

View PostPieterg, on 07 October 2011 - 07:22 , said:

Forty Scripture Memory Verses On Healing

This is the best healing - having faith in God
Good luck

Edited by DaMeRiDa, 07 October 2011 - 01:17 .

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#15 Christopher Brunsdon

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Posted 08 October 2011 - 09:50

My thoughts to the family. My grandmother had MND and it was a test of our families faith.

#16 CaptainDura

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Posted 13 October 2011 - 09:24

Thanks buddy for your efforts thus far.

We can only hope and pray knowing that her fate lies not in our hands but in our faith.

Keep up the good work
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